I have moved this post to my new blog, as I no longer use this one, and apparently google penalizes you for duplicating content.
Grieving & Chronic Illness (this is what it feels like) was my first attempt at expressing the grief that comes along with being sick forever. I wrote it while still in the especially difficult space of pre-diagnosis, before having a name for the changes that were happening to me, and before finding the spoon theory and chronic illness support communities. Writing this led me to those support communities, so this piece holds a special place in my heart. You can find it here.